Public Services Seminar Outcomes: Small Group Discussions

We asked groups of ten people who were from different backgrounds (researchers, autistic individuals, parents and professionals from health, government or charity sectors) to discuss these questions;

1. What new partnerships and ways of working are needed to undertake high quality public services research? (Newcastle)
   
2. How can we reduce disparities in access and entitlement to adult services?  (Cardiff)
   
3. How can we ensure that evidence-based services are being provided for children and their families? (Cardiff)
   

Here is an example of the themes that emerged from one of these questions (Cardiff).  

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Public Services slides - Cardiff seminars

You can download slides from most speakers at the Cardiff seminar here:

1. Sue Leekam, Jeremy Parr, Lynda Morgan: Welcome
   
2. Patricia Howlin: Outcome for adults - How can the future be improved?
   
3. Dami Benbow: Ambitious about autism - MyVoice
   
4. Alex Lowery: Support for people with autism
   
5. Sarah Bunce: Diagnosis, navigating university, entering motherhood
   
6. Bruce Etherington: Research impact and public services
   
7. Ian Jones: National Centre Mental Health
   
8. Jo Manikiza: Welsh Government Strategy and Resources
   
9. Angela Martin: Involving and engaging the public
   
10. Barbara Moore: Engagement in research
    
11. Lisa Hurt and Kate Langley: Care pathways
    
12. Catherine Jones: What new directions for autism research? 
    
13. Bev Winn: Relationships
    
14. Sarah Barrett: Imagination and repetitive behaviour
    
15. Georgie Powell: Attention
    

How did the Cardiff seminar fare?

Feedback from participants who attended the Public Services seminar in Cardiff.

NB: In each case the maximum possible score is 5. Higher scores indicate more positive ratings. Ratings reported only for delegates who were unconnected with the seminar organisation and the Wales Autism Research Centre. 

Our second seminar in Newcastle - what were we trying to achieve?

In November 2015, we held the second in this series of six seminars in Newcastle. The seminar programme provides more details about the structure of the seminar over the two days and Jeremy Parr’s introduction slides explains what we set out to achieve. 

How did the Newcastle seminar fare?

Feedback from the Public Service seminar in Newcastle.

A new way to share seminar outputs…

The Shaping Autism Research seminar series aims to set a new collaborative direction for the future of autism research in the UK, incorporating the perspectives of researchers, practitioners, autistic people and their families on equal terms. One way to set out on this collaborative pathway is to ensure that outputs from the seminar series are not developed only by the organising group but are shared with the community during the draft phase.

To this end we will be sharing on this site drafts of each of the proposed main seminar outputs, as .doc files, and inviting commentators to send us their feedback by posting in the comment box for each document post or using Google Docs to share comments. As each seminar in the series takes place, and the information and discussions are captured, these documents will be updated and new drafts will be posted on this page.

We encourage you all to read and comment on these documents so that we can produce outputs which can become useful tools to shape autism research of the future.

Stakeholder research-engagement guide

This document is the first draft of an output intended to provide guidance to stakeholders from the autism community on interaction with researchers.  It was derived from discussions at the first, Autism Practice seminar, in Edinburgh in June 2015 and we aim to share a revised version by March 2015. The next version will incorporate your feedback and discussions from the second seminar, on Public Services, which took place in Newcastle in November 2015.

You can access the document at this Google Docs link and comment by:

• sharing your thoughts in a comment on this page
• comment using Google Docs
  
• emailing one of the seminar organisers with your comments or edited document
  

Researcher Code of Practice

This document is the first draft of an output intended to provide guidance to established researchers on mimimum standards in community engagement.  It was derived from discussions at the first, Autism Practice seminar, in Edinburgh in June 2015 and we aim to share a revised version by March 2015. The next version will incorporate your feedback and discussions from the second seminar, on Public Services, which took place in Newcastle in November 2015.

You can access the document at this Google Docs link and comment by:

• sharing your thoughts in a comment on this page
• comment using Google Docs
  
• emailing one of the seminar organisers with your comments or edited document
  

Early career researcher guidance

This document is the first draft of an output intended to provide guidance to early career researchers on community engagement.  It was derived from discussions at the first, Autism Practice seminar, in Edinburgh in June 2015 and we aim to share a revised version by March 2015. The next version will incorporate your feedback and discussions from the second seminar, on Public Services, which took place in Newcastle in November 2015.

You can access the document at this Google Docs link and comment by:

• sharing your thoughts in a comment on this page
• comment using Google Docs
  
• emailing one of the seminar organisers with your comments or edited document
  

Third Seminar - Cardiff

The Cardiff Autism Services Seminar takes place on 4^th and 5^th February. While the Newcastle seminar focused on public services for older individuals, the focus for the Cardiff seminar is on younger adults and children. Both seminars address key questions in relation to the inclusion of individuals in accessing services and the role of advocacy. They also highlight the importance of involving the views of autistic people and their families in decisions that affect their lives and the need for integration and partnership working in research and services. Day 1 particularly focuses on services for adults and Day 2 on children’s services with a special focus on services in Wales.

Questions we will address.

• What can we learn by listening to the experiences of autistic individuals and family members in relation to services?
• Why are there disparities in access to services and how can we reduce them?
• What changes are needed in public services and why?
• How can researchers engage more effectively with service professionals, autistic individuals and their family members?
• How can we ensure evidence based methods of assessment, support and social care take place across different agencies?

*please note seminar attendance is by invitation only. The seminar will not be recorded but you can follow it on twitter. There is also the discussion space on the Autism Research Policy Practice Hub http://www.autismrpphub.org/

Cardiff programme schedule

Day one

10:15 Tea and coffee

10:45: Introductory talks and seminar

12:35: Lunch

13:35: Afternoon seminar

15:10: Tea and coffee

15:40: Seminar

17:30: Finish

Day two

8:45: Tea and coffee

9:15: Seminar begins

10:45: Tea and coffee

11:15: Seminar

12:45: Lunch

13:30: Afternoon seminar

15:00: Tea and coffee

You can view the full programme here.

You can view an accessibility summary here.

Cardiff Seminar: Accessibility Summary

Click here to download an accessibility summary that has been prepared following an inspection of the venue by our autistic consultant David Malins.

The Venue: Glamorgan Building

The seminar will take place at The Glamorgan Building at Cardiff University’s Cathays Campus. The venue has been inspected by autistic individuals for the presence of unpleasant sensory stimuli or other obstacles to autistic accessibility.

Committee Room 1 will be well signposted and you will be greeted by members of the Wales Autism Research Centre team as you arrive – you can see additional pictures here.